MACROGLOBULINEMIA DI WALDENSTROM (MW)

CONDIVIDI

Bibliografia

La Macroglobulinemia di Waldenström (MW)

  • Anderson KC et al. Waldenström's macroglobulinemia/lymphoplasmacytic lymphoma, version 2.2013. J Natl Compr Canc Netw 2012;10(10):1211-9.
  • Ansell SM et al. Diagnosis and management of Waldenström macroglobulinemia: Mayo stratification of macroglobulinemia and risk-adapted therapy (mSMART) guidelines. Mayo Clin Proc 2010;85(9):824-33.
  • Dimopoulos MA et al. Treatment recommendations for patients with Waldenström macroglobulinemia (WM) and related disorders: IWWM-7 consensus. Blood 2014;124(9):1404-11.
  • D'Souza A, et al. Waldenström macroglobulinaemia: the key questions. Br J Haematol 2013;162(3):295-303.
  • Gertz MA. Waldenström macroglobulinemia: 2012 update on diagnosis, risk stratification, and management. Am J Hematol 2012;87(5):503-10.
  • Gertz MA. Waldenström macroglobulinemia: 2013 update on diagnosis, risk stratification, and management. Am J Hematol 2013;88(8):703-11.
  • Ghobrial IM. Are you sure this is Waldenström macroglobulinemia? Hematology Am Soc Hematol Educ Program 2012:586-94.
  • IWMF. A proposito di Macroglobulinemia di Waldenström – Sintesi. Fondazione Macroglobulinemia di Waldenström © 2016 Internazionale. Disponibile on line: http://www.iwmf.com/sites/default/files/Scheda_WM_AspettiSalienti_Ita_Rev.pdf.
  • Janz S. Waldenström Macroglobulinemia: Clinical and Immunological Aspects, Natural History, Cell of Origin, and Emerging Mouse Models. ISRN Hematol 2013:1-25.
  • Kyle RA et al. Monoclonal gammopathy of undetermined significance (MGUS) and smoldering (asymptomatic) multiple myeloma: IWMG consensus perspectives risk factors for progression and guidelines for monitoring and management. Leukemia 2010;24(6):1121-7.
  • Kyle RA et al. Progression in smoldering Waldenström macroglobulinemia: long-term results. Blood 2012;119(19):4462-6.
  • McMaster ML, Landgren O. Prevalence, clinical aspects, and natural history of IgM MGUS. Cytometry B Clin Cytom 2010;78(Suppl 1):S91-7.
  • Swerdlow S et al. Lymphoplasmacytic Lymphoma. In: Swerdlow S et al, eds. WHO Classification of Tumours of Haematopoietic and Lymphoid Tissues. Lyon,France: International Agency for Research on Cancer; 2008: p194-5.
  • van de Donk NW et al. The clinical relevance and management of monoclonal gammopathy of undetermined significance and related disorders: recommendations from the European Myeloma Network. Haematologica 2014.

Infezioni e WM

  • National Cancer Institute. 2012. Managing chemotherapy side effects. http://www.cancer.gov/publications/patient-education/infection.pdf (Ultimo accesso 30 maggio 2016)
  • Centers for Disease Control and Prevention (CDC). Preventing infections in cancer patients. http://www.cdc.gov/cancer/preventinfections/clean_hands.htm (Ultimo accesso 30 maggio 2016)
  • Centers for Disease Control and Prevention (CDC). When & How to Wash Your Hands. http://www.cdc.gov/handwashing/when-how-handwashing.html (Ultimo accesso 30 maggio 2016)
  • 3 Steps Toward Preventing Infections During Cancer Treatment. Protecting Skin From Cuts, Scrapes, Injury and Infection.http://www.preventcancerinfections.org/health-tipsheet/ basic-hygiene-practices (Ultimo accesso 30 maggio 2016)
  • Leukemia & Lymphoma Society. Infections. https://www.lls.org/treatment/managing-sideeffects/ infections (Ultimo accesso 30 maggio 2016)

Curarsi con cura

  • AIFA. Aderenza alle terapie e strategie per migliorare l’uso sicuro ed efficace dei farmaci. http://www.agenziafarmaco.gov.it/it/content/aderenza-alle-terapie-e-strategie-migliorarel%E2%80%99uso-sicuro-ed-efficace-dei-farmaci (ultimo accesso 30 maggio 2016)
  • CRUK. Taking medicines. http://www.cancerresearchuk.org/about-cancer/cancers-ingeneral/treatment/cancer-drugs/taking-medicines (ultimo accesso 30 maggio 2016)
  • Ruddy, K., et al. Patient adherence and persistence with oral anticancer treatment. CA Cancer J Clin 2009; 59: 56–66.
  • Osterberg, L. & Blaschke, T. Adherence to medication. N Engl J Med 2005; 353: 487–497.
  • Cancer.Net. The Importance of Taking Your Medication Correctly. http://www.cancer.net/navigating-cancer-care/managing-your-care/importance-taking-yourmedication-correctly (ultimo accesso 30 maggio 2016)
  • WHO. 2003. Adherence to long-term therapies – evidence for action. World Health Organization.http://www.who.int/chp/knowledge/publications/adherence_report/en/ (ultimo accesso 30 maggio 2016)
  • AIMaC. Come potete aiutare voi stessi. https://www.aimac.it/vivere-con-il-tumore/comepotete-aiutare-voi-stessi (ultimo accesso 30 maggio 2016)
  • AIMaC. La nutrizione nel malato oncologico. http://www.aimac.it/libretti-tumore/nutrizionemalato-cancro (ultimo accesso 30 maggio 2016)
  • Macmillan. Maintaining A Healthy Lifestyle. http://www.macmillan.org.uk/information-andsupport/coping/maintaining-a-healthy-lifestyle (ultimo accesso 30 maggio 2016)
  • Macmillan. Your emotions. http://www.macmillan.org.uk/information-andsupport/coping/your-emotions (ultimo accesso 30 maggio 2016)
  • National Cancer Institute. 2012. Managing chemotherapy side effects. http://www.cancer.gov/publications/patient-education/infection.pdf (ultimo accesso 1 giugno 2016)

Consigli generali per una alimentazione sana

  • INRAN. Linee Guida per una Sana Alimentazione Italiana. http://www.salute.gov.it/imgs/C_17_pubblicazioni_652_allegato.pdf (Ultimo accesso 30 maggio 2016)
  • Ministero della salute. Alimentazione corretta. http://www.salute.gov.it/portale/salute/p1_5.jsp?lingua=italiano&id=108&area=Vivi_sano (Ultimo accesso 30 maggio 2016)
  • AIMaC. La nutrizione nel malato oncologico. http://www.aimac.it/libretti-tumore/nutrizionemalato-cancro (Ultimo accesso 30 maggio 2016)
  • AIRC. Curare il cancro a tavola. http://www.airc.it/cancro/affrontare-malattia/correttaalimentazione/(Ultimo accesso 30 maggio 2016)
  • Leukemia & Lymphoma Society. Food and Nutrition Facts. https://www.lls.org/sites/default/

Consigli alimentari specifici

  • Ministero della salute. Alimentazione corretta. http://www.salute.gov.it/portale/salute/p1_5.jsp?lingua=italiano&id=108&area=Vivi_sano (Ultimo accesso 30 maggio 2016)
  • AIMaC. La nutrizione nel malato oncologico. http://www.aimac.it/libretti-tumore/nutrizionemalato-cancro (Ultimo accesso 30 maggio 2016)
  • AIMaC. La fatigue. https://www.aimac.it/libretti-tumore/fatigue (Ultimo accesso 30 maggio 2016)
  • AIRC. Curare il cancro a tavola. http://www.airc.it/cancro/affrontare-malattia/correttaalimentazione/(Ultimo accesso 30 maggio 2016)
  • Leukemia & Lymphoma Society. Food and Nutrition Facts. https://www.lls.org/sites/default/files/file_assets/foodnutritionfacts.pdf (Ultimo accesso 14 Dicembre 2015)
  • INRAN. Linee Guida per una Sana Alimentazione Italiana. http://www.salute.gov.it/imgs/C_17_pubblicazioni_652_allegato.pdf (Ultimo accesso 30 maggio 2016)
  • Macmillan. Avoiding Infection. http://www.macmillan.org.uk/information-andsupport/coping/side-effects-and-symptoms/other-side-effects/avoiding-infection.html#tcm:9-46201 (Ultimo accesso 30 maggio 2016)
  •  Ministero della Salute. Suggerimenti utili per la sicurezza degli alimenti a casa. http://www.salute.gov.it/imgs/C_17_opuscoliPoster_71_allegato.pdf (Ultimo accesso 30 maggio 2016)

Il movimento che aiuta

  • NHS. Easy exercises. http://www.nhs.uk/Livewell/fitness/Pages/Lowimpact.aspx (ultimo accesso 30 maggio 2016)
  • Macmillan. Managing symptoms of fatigue. http://www.macmillan.org.uk/information-andsupport/coping/side-effects-and-symptoms/tiredness/tips-manage-symptomsfatigue.html#tcm:9-6389 (ultimo accesso 30 maggio 2016)
  • Macmillan. Benefits of being active. http://www.macmillan.org.uk/information-andsupport/coping/maintaining-a-healthy-lifestyle/keeping-active/benefits-of-beingactive.html#96481 (ultimo accesso 30 maggio 2016)
  • Macmillan. Different ways of being active. http://www.macmillan.org.uk/information-andsupport/coping/maintaining-a-healthy-lifestyle/keeping-active/different-ways-beingactive.html#103131 (ultimo accesso 30 maggio 2016)
  • Macmillan. Tips to get you started. http://www.macmillan.org.uk/information-andsupport/coping/maintaining-a-healthy-lifestyle/keeping-active/tips-to-get-youstarted.html#tcm:9-8455 (ultimo accesso 30 maggio 2016)
  • La fatigue. I libretti di AIMaC. http://www.aimac.it/libretti-tumore/fatigue (ultimo accesso 30 maggio 2016)
  • Macmillan. Avoiding infection. http://www.macmillan.org.uk/information-andsupport/coping/side-effects-and-symptoms/other-side-effects/avoiding-infection.html (ultimo accesso 30 maggio 2016)

Il dialogo con il medico

  • NIA (National Institute on Aging). Talking with your doctor: A guide for older people. https://www.nia.nih.gov/health/publication/talking-your-doctor/opening-thoughts-why-doesit-matter (Ultimo accesso 30 maggio 2016)
  • Agency for Healthcare Research and Quality. During your appointment. http://www.ahrq.gov/patients-consumers/patient-involvement/ask-your-doctor/questionsduring-appointment.html (Ultimo accesso 30 maggio 2016)
  • Agency for Healthcare Research and Quality. Before your appointment. http://www.ahrq.gov/patients-consumers/patient-involvement/ask-your-doctor/questionsbefore-appointment.html (Ultimo accesso 30 maggio 2016)
  • Hoekstra J, Bindels PJ, van Duijn NP, Schade E. The symptom monitor. A diary for monitoring physical symptoms for cancer patients in palliative care: feasibility, reliability and compliance. J Pain Symptom Manage 2004; 27: 24–35.

Gestire le emozioni negative

  • Macmillan. Your emotions. http://www.macmillan.org.uk/information-andsupport/coping/your-emotions (ultimo accesso 30 maggio 2016)
  • CRUK. About emotions and cancer. http://www.cancerresearchuk.org/about-cancer/copingwith-cancer/coping-emotionally/cancer-and-your-emotions/about-your-emotions-andcancer/ (ultimo accesso 30 maggio 2016)
  • CRUK. Coping with sadness. http://www.cancerresearchuk.org/about-cancer/coping-withcancer/coping-emotionally/cancer-and-your-emotions/sadness-and-depression/coping-ithsadness
  • (ultimo accesso 30 maggio 2016)
  • CRUK. About fear, anxiety and panic. http://www.cancerresearchuk.org/aboutcancer/coping-with-cancer/coping-emotionally/cancer-and-your-emotions/fear-anxiety-andpanic/about-fear-anxiety-and-panic (ultimo accesso 30 maggio 2016)
  • CRUK. Managing fear, anxiety and panic. http://www.cancerresearchuk.org/aboutcancer/coping-with-cancer/coping-emotionally/cancer-and-your-emotions/fear-anxiety-andpanic/managing-fear-anxiety-and-panic (ultimo accesso 30 maggio 2016)
  • CRUK. Guilt, blame and anger. http://www.cancerresearchuk.org/about-cancer/coping-withcancer/coping-emotionally/cancer-and-your-emotions/guilt-blame-and-anger (ultimo accesso 30 maggio 2016)

Occuparsi di una persona con WM

  • Baugh, E.J. & Humphries, D. Can we talk? Improving Couples’ Communication. University of Florida; 2010.
  • National Cancer Institute. Caring for the Caregiver.http://www.cancer.gov/publications/patienteducation/caring-for-the-caregiver.pdf (ultimo accesso 30 maggio 2016